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- Matvey Romanchik
Total raised
BYN 4 348,87
Total raised (%)
100%
Matvey Romanchik
10/06/2015, Svisloch, Pukhovichi district, Minsk region
Matvey Romanchik
06.10.2015, Svisloch, Pukhovichi district, Minsk region
- Diagnosis: X-linked adrenoleukodystrophy with incipient cognitive and behavioral disorders
- Fundraising goal: genetic analysis
Fundraising is over
Meet the child
Matvey experienced his first convulsive syndrome in October 2023. As a result of numerous examinations, the child was diagnosed with a terrible diagnosis - X-linked adrenoleukodystrophy (clinical and radiological symptom complex) with incipient cognitive and behavioral disorders, symptomatic epilepsy with focal and bilateral tonic-colonic seizures. Matvey was supported by «Chance» program.
«To clarify the diagnosis, a genetic study is needed - whole exome sequencing»
Republican Research and Clinical Center of Neurology and Neurosurgery
Together we make a difference!
21.03.2017, Minsk
- Diagnosis: neurotrophic keratitis of both eyes
- Fundraising goal: purchase of medication
Amount needed
124 122
We still need to raise
74 283
Total raised (%)
40%
04.05.2010, Zhlobin, Gomel region
- Diagnosis: acquired three-stage aplastic anemia, superheavy course
- Fundraising goal: purchase of medication
Amount needed
257 865
We still need to raise
104 663
Total raised (%)
59%